The AGSD-UK provides support and help for individuals and families affected by Glycogen Storage Disease (GSD). It does this by putting people in contact, providing information, issuing Newsletters and holding Conferences and Workshops. Find out more about us and what we do by exploring the menus above or using the site map.
Glycogen is a stored form of glucose, which is used as a fuel for energy. Glycogen Storage Disease occurs when there is an absence or deficiency of an enzyme needed to produce or break down glycogen. GSD primarily affects the liver and/or the muscles.
Our 30th Anniversary Conference this year was held at Tortworth Court Hotel in Gloucestershire. We had our largest turnout ever and the feedback has been really excellent. Look out for the conference report in the next issue of Glisten.
There are 5k runs all around the country that you can join in the name of the AGSD-UK. A full list of venues is listed here.
Once you have selected your event contact the office and we'll make sure we have places available for you and anyone else you'll be running with.
Contact Fundraising for more information.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271