The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria



The AGSD-UK provides support and help for individuals and families affected by Glycogen Storage Disease (GSD). It does this by putting people in contact, providing information, issuing Newsletters and holding Conferences and Workshops. Find out more about us and what we do by exploring the menus above or using the site map.

Glycogen is a stored form of glucose, which is used as a fuel for energy. Glycogen Storage Disease occurs when there is an absence or deficiency of an enzyme needed to produce or break down glycogen. GSD primarily affects the liver and/or the muscles.


Tortworth CourtConference 2016

Our Conference this year will be held at Tortworth Court Hotel in Gloucestershire. Weekend of 15 and 16 October. Register early to guarantee your place and subsidised room rates. More information here.

Contact The Office for more information.

Run for the AGSD-UK

There are 5k runs all around the country that you can join in the name of the AGSD-UK. A full list of venues is listed here.

Once you have selected your event contact the office and we'll make sure we have places available for you and anyone else you'll be running with.

Contact Fundraising for more information.

Bake or Burn Campaign - Making Calories Count!

Whether you prefer to bake-off or burn-off calories, you can join our calorific campaign to raise funds and awareness for kids living with GSD.
BAKING  - Self-raising awareness
If you prefer baking then why not hold a cake sale for your friends or work colleagues? Of course you don’t have to make cakes; you can cook anything you like; how about selling hot soup and bread rolls after a brisk country walk? Or hold a “Come Dine with Me” evening for friends and neighbours?
BURNING – £ for lb?
If you’re more of the active type; then try a sponsored walk, run, cycle, swim or any other activity to burn off a few calories. You can join an organised event or make up one of your own with family and friends.
Contact Fundraising to discuss how we can help you make every calorie count