Annual Conference

  Wyboston Lakes


  Sat 10 and Sun 11 October

  Click here







The AGSD-UK provides support and help for individuals and families affected by Glycogen Storage Disease (GSD). It does this by putting people in contact, providing information, issuing Newsletters and holding Conferences and Workshops. Find out more about us and what we do by exploring the menus above or using the site map.

Glycogen is a stored form of glucose, which is used as a fuel for energy. Glycogen Storage Disease occurs when there is an absence or deficiency of an enzyme needed to produce or break down glycogen. GSD primarily affects the liver and/or the muscles.


The AGSD-UK 2015 conference seems to have been a great success this year:


I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! 

The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition.

Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too!

What a fantastic thing you do - thank you so much, from all of us!!



Run for AGSD-UK - click on the image

Parachute jumps

Various locations, you choose the date.
Ever felt the need to jump out of a plane at 10,000 feet? Well we can help you do it! Details


Morocco Mountain Trek 

Trek Mount Toubkal

  • Explore the spectacular Atlas Mountains
  • Climb North Africa’s highest peak
  • Trek through remote Berber villages
  • Camp out under the stars
  • Discover the imperial city of Marrakech 

Details (takes you to Classic Tours Website)

Want to do your own thing... Can we help you?

If you have your own ideas or plans and want to raise funds for AGSD-UK then we may well be able to help! Details