Site map Search New on the site Contact us
HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
As a registered charity the AGSD (UK) reports annually to members at an Annual General Meeting. The annual report and the financial accounts are then filed with the Charity Commission. Now that we have converted to a company limited by guarantee, with effect from 2009/10 we will also be filing with Companies House. Listed below are links for both the report and accounts and the AGM minutes for recent years. These are PDF files and will either download to disk or open in a new browser window, depending on how your browser is configured.