A marathon for AGSD-UK
 Angela Regazzoni is running the London Marathon on 22 April. Read more and sponsor her - click here.
AGSD-UK Annual Conference 2012 Bedfordshire

A date for your diary - Sat 29 and Sun 30 September. A fabulous location for a great weekend. More details.
Pilot drug trial in McArdle's
 The MDC has announced a major grant for a pilot drug trial in McArdle Disease. You can read more about the grant here.

 

 

Board of Trustees

The AGSD-UK is managed by a volunteer Board of Trustees elected by its members at the Annual General Meeting held each year as part of the Annual Conference. The current members of the board are listed below. If you would like to volunteer to help the charity in any capacity or would like to consider becoming a Trustee, please get in touch with the Chairman via the Contact us page.

For background information about our Trustees and officers please see our profiles page.

Sue Del Mar - Trustee
sue.delmar@agsd.org.uk

Ann Phillips - Trustee
ann.phillips@agsd.org.uk

Patrick Phillips - Trustee and Secretary
patrick.phillips@agsd.org.uk

Jayesh Pindolia - Trustee
jayesh.pindolia@agsd.org.uk

Andrew Wakelin - Chairman
chairman@agsd.org.uk

AGSD-UK Staff

The following staff are based at the AGSD-UK office (hours Monday to Thursday 9am-5pm). Address & telephone.

Allan Muir - Development Director
allan.muir@agsd.org.uk

Wendy Griffiths - Administrator
wendy.griffiths@agsd.org.uk

 

Other AGSD-UK staff

Steve Saunders - Fund raiser
fundraising@agsd.org.uk

Joan Fletcher, FCO/CNS - Family Support Officer
(Joan is employed by the NHS under a grant from Genzyme Therapeutics Ltd to support Pompe families.)
joan.fletcher@pompe.org.uk

GSD Type Co-ordinators

The following are volunteer co-ordinators of the various GSD Types. We would welcome volunteers to assist with the GSD Types not listed here.

The work load of the GSD Type Co-ordinators varies according to the number of GSD Type members, their needs and the level of professional activity such as clinics, treatments, research, etc. These are voluntary roles and it may not be possible, or even relevant, for all co-ordinators to undertake all of the role description.

Sue Del Mar - GSD Type I (Von Gierke) Co-ordinator
type1@agsd.org.uk

Allan Muir - GSD Type II (Pompe) Co-ordinator
type2@agsd.org.uk

Esther James - GSD Type III (Cori) Co-ordinator
type3@agsd.org.uk

Larissa Lowe - GSD Type IV (Andersen) Co-ordinator
type4@agsd.org.uk

Andrew Wakelin - GSD Type V (McArdle) Co-ordinator
type5@agsd.org.uk

Volunteer appointments

The following are other volunteer appointments of the AGSD-UK.

Kate Phillips - Newsletter Editor
editor@agsd.org.uk