Site map Search New on the site Contact us
HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
The Association for Glycogen Storage Disease (UK) Limited is a membership based association. It is a company limited by guarantee which is registered as company number 6981121.
AGSD (UK) is a charity registered under number 1132271 with the Charity Commission for England and Wales, although we cover the whole of the United Kingdom. Our details can be viewed on the Charity Commission website. (Prior to incorporation our registration number was 327841.)
The AGSD is governed by a Memorandum and Articles of Association. This document sets out the objects of the charity, how the Trustees are appointed, how meetings are conducted and how the finances are managed. The members of the charity elect the Trustees who manage the association on behalf of the members.