The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria

 

Governance of AGSD-UK

The Association for Glycogen Storage Disease (UK) Limited is a membership based association. It is a company limited by guarantee which is registered as company number 6981121.

AGSD-UK is a charity registered under number 1132271 with the Charity Commission for England and Wales, although we cover the whole of the United Kingdom. Our details can be viewed on the Charity Commission website. (Prior to incorporation our registration number was 327841.)

The AGSD-UK is governed by a Memorandum and Articles of Association. This document sets out the objects of the charity, how the Trustees are appointed, how meetings are conducted and how the finances are managed.

The members of the charity elect the Trustees who manage the association on behalf of the members.