HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 


 

HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 

New on the site

To help regular visitors to this site know what is new since their last visit, this is a list of recent changes to parts of this AGSD-UK site.

 

17/01/2010 - Section added on the McArdle Handbook Project.
16/11/2009 - Minutes of the Board of Trustees meetings are now published under the About AGSD-UK menu.
05/08/2009 - Proposals by the Executive Committee for a new legal format for the association.
21/07/2009 - Basic search facility provided.
19/07/2009 - Menus restructured and site map added.
06/07/2009 - Type V - Second wind section added.
03/07/2009 - Information on 2009 Conference, Leicester.
06/06/2009 - Expanded information on Type VII.
02/06/2009 - Mark Upham's marathon added to Past Fund Raising.
01/06/2009 - Past conference reports added.
21/05/2009 - Section added for GSD Type 0 and information on Type IV expanded.
20/05/2009 - Annual Report and accounts for 2008 now available
19/05/2009 - Summer 2008 and Spring 2009 newsletters added
18/05/2009 - Date of 2009 conference
26/04/2009 - At a Glance - Mark Upham's finish in the London Marathon

 

New on the site

To help regular visitors to this site know what is new since their last visit, this is a list of recent changes to parts of this AGSD-UK site.

 

17/01/2010 - Section added on the McArdle Handbook Project.
16/11/2009 - Minutes of the Board of Trustees meetings are now published under the About AGSD-UK menu.
05/08/2009 - Proposals by the Executive Committee for a new legal format for the association.
21/07/2009 - Basic search facility provided.
19/07/2009 - Menus restructured and site map added.
06/07/2009 - Type V - Second wind section added.
03/07/2009 - Information on 2009 Conference, Leicester.
06/06/2009 - Expanded information on Type VII.
02/06/2009 - Mark Upham's marathon added to Past Fund Raising.
01/06/2009 - Past conference reports added.
21/05/2009 - Section added for GSD Type 0 and information on Type IV expanded.
20/05/2009 - Annual Report and accounts for 2008 now available
19/05/2009 - Summer 2008 and Spring 2009 newsletters added
18/05/2009 - Date of 2009 conference
26/04/2009 - At a Glance - Mark Upham's finish in the London Marathon