The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria

 

How we help

The AGSD-UK aims to help patients and their families affected by Glycogen Storage Diseases in a number of ways. We:

  • Act as a family contact and support group.
  • Provide information on request by phone or email.
  • Hold conferences and type-specific workshops.
  • Contribute towards travel and accommodation expenses incurred by people attending AGSD-UK conferences and other GSD related events, who otherwise would not be able to attend.
  • Produce reports on the conferences and workshops held.
  • Carry out, promote and/or support research and surveys into GSDs.
  • Publish a Newsletter three times a year (click on box at side to register to receive this free by email).
  • Publish information on our website.