15th April 2015

International Pompe Day

 

Pompe Update

Healthcare at Home

Deliveries Statement

 

GSD Giant 2015 

Annual cyclo-sportive.

6th September 2015

The Petersfield School

100, 64, 32 mile options

 

GSD Giant website
  

 

Our objectives

The Association for Glycogen Storage Disease (UK) Limited aims to provide support to persons affected by Glycogen Storage Disease (GSD) and their families throughout the UK.

Our object is "The relief of sickness, particularly of persons suffering from any form of Glycogen Storage Disease". In more detail we:

  • Protect and promote the best interests of persons affected with GSD.
  • Act as a vehicle of communication on GSD related matters by publishing and distributing relevant material.
  • Contribute to the advancement of treatments and cures through sponsorship of research, studies and trials.
  • Act as a focus for educational, scientific and charitable activities related to GSD.
  • Liaise with other GSD associations around the world.