The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria


Our objectives

The Association for Glycogen Storage Disease (UK) Limited aims to provide support to persons affected by Glycogen Storage Disease (GSD) and their families throughout the UK.

Our object is "The relief of sickness, particularly of persons suffering from any form of Glycogen Storage Disease". In more detail we:

  • Protect and promote the best interests of persons affected with GSD.
  • Act as a vehicle of communication on GSD related matters by publishing and distributing relevant material.
  • Contribute to the advancement of treatments and cures through sponsorship of research, studies and trials.
  • Act as a focus for educational, scientific and charitable activities related to GSD.
  • Liaise with other GSD associations around the world.