15th April 2015

International Pompe Day

 

Pompe Update

Healthcare at Home

Deliveries Statement

 

GSD Giant 2015 

Annual cyclo-sportive.

6th September 2015

The Petersfield School

100, 64, 32 mile options

 

GSD Giant website
  

 

Medical Advisory Board

The AGSD-UK has a Medical Advisory Board of medical and research professionals who are able to advise the Board of Trustees on policy issues and on funding applications. We are very grateful for their support.


Mrs Nicola Cartwright
University Hospitals Birmingham NHS Foundation Trust, UK


Dr Anupam Chakropani
Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK


Mrs Marjory Dixon
Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK


Mrs Charlotte Ellerton
MRC Centre for Neuromuscular Diseases, National Hospital for Neurology and Neurosurgery, London, UK


Prof Simon Heales
Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK


Dr Chris Hendrickz
Salford Royal Foundation NHS Trust, UK


Dr Robin Lachmann
Charles Dent Metabolic Unit, National Hospital for Neurology and Neurosurgery, London, UK


Dr Helen Mundy
Metabolic Department, Guys and St Thomas NHS Foundation Trust, London, UK


Dr Philip Newsome
Liver and Hepatobiliary Unit, Queen Elizabeth Hospital, Birmingham, UK


Mr Jatin Pattni
MRC Centre for Neuromuscular Diseases, National Hospital for Neurology and Neurosurgery, London, UK


Dr Ros Quinlivan
MRC Centre for Neuromuscular Diseases, National Hospital for Neurology and Neurosurgery, London, UK


Dr Mark Roberts
Withington Hospital, Manchester, UK


Dr Peter Robinson
Royal Hospital for Sick Children, Yorkhill NHS Trust, Glasgow, UK