The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria

 

Medical Advisory Board

The AGSD-UK has a Medical Advisory Board of medical and research professionals who are able to advise the Board of Trustees on policy issues and on funding applications. We are very grateful for their support.


Mrs Nicola Cartwright
University Hospitals Birmingham NHS Foundation Trust, UK


Dr Anupam Chakropani
Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK


Mrs Marjory Dixon
Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK


Mrs Charlotte Ellerton
MRC Centre for Neuromuscular Diseases, National Hospital for Neurology and Neurosurgery, London, UK


Prof Simon Heales
Great Ormond Street Hospital for Children NHS Foundation Trust, London, UK


Dr Chris Hendrickz
Salford Royal Foundation NHS Trust, UK


Dr Robin Lachmann
Charles Dent Metabolic Unit, National Hospital for Neurology and Neurosurgery, London, UK


Dr Helen Mundy
Metabolic Department, Guys and St Thomas NHS Foundation Trust, London, UK


Dr Philip Newsome
Liver and Hepatobiliary Unit, Queen Elizabeth Hospital, Birmingham, UK


Mr Jatin Pattni
MRC Centre for Neuromuscular Diseases, National Hospital for Neurology and Neurosurgery, London, UK


Dr Ros Quinlivan
MRC Centre for Neuromuscular Diseases, National Hospital for Neurology and Neurosurgery, London, UK


Dr Mark Roberts
Withington Hospital, Manchester, UK


Dr Peter Robinson
Royal Hospital for Sick Children, Yorkhill NHS Trust, Glasgow, UK