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HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
The AGSD (UK) has a Scientific Advisory Board of medical and research professionals who are able to advise the Board of Trustees on policy issues and on funding applications. We are very grateful for their support.
Dr Helen Mundy MRCP Metabolic Department, Guys and St Thomas NHS Foundation Trust, London, UK
Dr Philip Newsome MBChB BSc MRCP PhD Liver and Hepatobiliary Unit, Queen Elizabeth Hospital, Birmingham, UK
Prof Ans van der Ploeg Sophia Children's Hospital, Rotterdam, Netherlands
Dr Ros Quinlivan BSc MB FRCPCH Robert Jones and Agnes Hunt Orthopaedic Hospital, Oswestry, UK
Dr Peter Robinson BSc MBBCh MRCP(UK) FRCPCH Royal Hospital for Sick Children, Yorkhill NHS Trust, Glasgow, UK
Dr Arnold Reuser PhD Department of Clinical Genetics, Rotterdam, Netherlands
Dr John Walter MD FRCPCH Royal Manchester Children's Hospital, Manchester, UK