The AGSD-UK is managed by a volunteer Board of Trustees elected by its members at the Annual General Meeting held each year as part of the Annual Conference. The current members of the board are listed below. Trustees are unpaid volunteers and are debarred by charity law from any financial gain from their involvement with the charity. If you would like to volunteer to help the charity in any capacity or would like to consider becoming a Trustee, please get in touch with the Chairman via the Contact us page.
For background information about our Trustees and officers please see our profiles page.
Michael Porter - Chairman
Shaun Griffin - Trustee
Stuart Alderson - Trustee
Jayesh Pindolia - Trustee
The following paid staff are based at the AGSD-UK office (hours Monday to Thursday 9am-5pm). Address & telephone.
Allan Muir - Charity Director
Home-based paid staff
Jane Lewthwaite - Specialist Care Advisor (Pompe)
Jane is employed through industry grants to support Pompe patients and families.
Please see the list of volunteer co-ordinators here.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271