The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria


Board of Trustees

The AGSD-UK is managed by a volunteer Board of Trustees elected by its members at the Annual General Meeting held each year as part of the Annual Conference. The current members of the board are listed below. Trustees are unpaid volunteers and are debarred by charity law from any financial gain from their involvement with the charity. If you would like to volunteer to help the charity in any capacity or would like to consider becoming a Trustee, please get in touch with the Chairman via the Contact us page.

For background information about our Trustees and officers please see our profiles page.

Michael Porter - Chairman

Shaun Griffin - Trustee

Stuart Alderson - Trustee

Jayesh Pindolia - Trustee



The following paid staff are based at the AGSD-UK office (hours Monday to Thursday 9am-5pm). Address & telephone.

Allan Muir - Charity Director


Home-based paid staff

Jane Lewthwaite - Specialist Care Advisor (Pompe)
Jane is employed through industry grants to support Pompe patients and families.

GSD Type Co-ordinators

Please see the list of volunteer co-ordinators here.