HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 


 

HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 

Our objectives

The Association for Glycogen Storage Disease (UK) Limited aims to provide support to persons affected by Glycogen Storage Disease (GSD) and their families throughout the UK.

Our object is "The relief of sickness, particularly of persons suffering from any form of Glycogen Storage Disease". In more detail we:

  • Protect and promote the best interests of persons affected with GSD.
  • Act as a vehicle of communication on GSD related matters by publishing and distributing relevant material.
  • Contribute to the advancement of treatments and cures through sponsorship of research, studies and trials.
  • Act as a focus for educational, scientific and charitable activities related to GSD.
  • Liaise with other GSD associations around the world.