The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria


About communications

One of the objectives of the AGSD-UK is to act as a vehicle for communication of GSD related matters by publishing and distributing relevant material. We do this primarily through this website, our newsletter and the Pompe Bulletin. We also produce a leaflet on the AGSD-UK and its work.

We tell you about the international support group GSD Net - a list server which enables people with GSDs from all around the world to communicate easily by email. And finally, we offer a page of links to other GSD related web sites.

We like to communicate via email to keep costs down, so please remember to keep us up to date with any changes to your email address. You can now do this by using the on-line registration form.  Alternatively use the contact us form.

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