15th April 2015

International Pompe Day


Pompe Update

Healthcare at Home

Deliveries Statement


GSD Giant 2015 

Annual cyclo-sportive.

6th September 2015

The Petersfield School

100, 64, 32 mile options


GSD Giant website


About communications

One of the objectives of the AGSD-UK is to act as a vehicle for communication of GSD related matters by publishing and distributing relevant material. We do this primarily through this website, our newsletter and the Pompe Bulletin. We also produce a leaflet on the AGSD-UK and its work.

We tell you about the international support group GSD Net - a list server which enables people with GSDs from all around the world to communicate easily by email. And finally, we offer a page of links to other GSD related web sites.

We like to communicate via email to keep costs down, so please remember to keep us up to date with any changes to your email address. You can now do this by clicking on the 'Login' link at the bottom of the page and entering your user name and password. Then click on your name to amend your email address and other details. Alternatively use the contact us form.

Please select from one of the items below.

For publications on Type II please see the Pompe Pages.