One of the objectives of the AGSD-UK is to act as a vehicle for communication of GSD related matters by publishing and distributing relevant material. We do this primarily through this website, our newsletter and the Pompe Bulletin. We also produce a leaflet on the AGSD-UK and its work.
We tell you about the international support group GSD Net - a list server which enables people with GSDs from all around the world to communicate easily by email. And finally, we offer a page of links to other GSD related web sites.
We like to communicate via email to keep costs down, so please remember to keep us up to date with any changes to your email address. You can now do this by using the on-line registration form. Alternatively use the contact us form.
Please select from one of the items below.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271