A marathon for AGSD-UK
 Angela Regazzoni is running the London Marathon on 22 April. Read more and sponsor her - click here.
AGSD-UK Annual Conference 2012 Bedfordshire

A date for your diary - Sat 29 and Sun 30 September. A fabulous location for a great weekend. More details.
Pilot drug trial in McArdle's
 The MDC has announced a major grant for a pilot drug trial in McArdle Disease. You can read more about the grant here.

 

 

About communications

One of the objectives of the AGSD-UK is to act as a vehicle for communication of GSD related matters by publishing and distributing relevant material. We do this primarily through this website, our newsletter and the Pompe Bulletin. We also produce a leaflet on the AGSD-UK and its work.

We tell you about the international support group GSD Net - a list server which enables people with GSDs from all around the world to communicate easily by email. And finally, we offer a page of links to other GSD related web sites.

We like to communicate via email to keep costs down, so please remember to keep us up to date with any changes to your email address. You can now do this by clicking on the 'Login' link at the bottom of the page and entering your user name and password. Then click on your name to amend your email address and other details. Alternatively use the contact us form.

Please select from one of the items below.


For publications on Type II please see the Pompe Pages.