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AGSD-UK Conference 2010
The Conference will be in central London on weekend of 20th-21st November. More details soon.
Walk over Wales... every step counts 2 July to 2 August 2010 Sponsored walk raising money for AGSD-UK. 210 miles. Details.
Walking with McArdle's - Wales An opportunity to enjoy a week's walking holiday in Snowdonia and learn how best to cope with McArdle's. July 2011. Details.
For Type II Pompe links see the Pompe Pages. For Type I Von Gierke and Type V McArdle links see their respective sections of this site. Please click here to report broken links.
CLIMB Children Living with Metabolic Diseases - the National Information Centre for Metabolic Diseases www.climb.org.uk
OMIM On-line Mendelian Inheritance in Man is a searchable database on all of the known genetic diseases. A lot of information but very technical. www.ncbi.nlm.nih.gov
The Muscular Dystrophy Association in Australia has information about several types of GSD. www.mda.org.au
Diseases of the Liver has information about the liver-related forms of GSD. www.cumc.columbia.edu
Children's Liver Disease Foundation - a useful website for liver diseases www.childliverdisease.org
Genetics Education Center at Kansas University A good collection of educational resources for genetics. www.kumc.edu
Contact a Family - for families with disabled children www.cafamily.org.uk
The Muscular Dystrophy Campaign in the UK works with the muscle-involved types of GSD. www.muscular-dystrophy.org
Medic Alert Foundation - identification system for individuals with hidden medical conditions. www.medicalert.org.uk
France - Association Francophone des Glycogénoses www.glycogenoses.org
Germany - Selbsthilfegruppe Glykogenose Deutschland e.V. www.glykogenose.de
Italy - Associazione Italiana Glicogenosi www.aig-aig.it
Spain - Asociacion Española de Enfermos de Glucogenosis (A.E.E.G.) www.glucogenosis.org
USA - Association for Glycogen Storage Disease www.agsdus.org