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AGSD-UK Conference 2010
The Conference will be in central London on weekend of 20th-21st November. More details soon.
Walk over Wales... every step counts 2 July to 2 August 2010 Sponsored walk raising money for AGSD-UK. 210 miles. Details.
Walking with McArdle's - Wales An opportunity to enjoy a week's walking holiday in Snowdonia and learn how best to cope with McArdle's. July 2011. Details.
The international GSD community is very well served by GSD Net. It is a FREE email mailing list system which enables communication between people with all types of glycogen storage disease. There are about 500 people registered from all around the world, including some professionals. It is a great way to ask a question and find other people who have already experienced the same issue. Or just share what you are going through. To make a 'post' you simply send an email to the server and it is sent out to everyone on the list. And of course you receive what everyone else posts. If you wish, you can restrict the emails you receive to just those concerning your own GSD type. To start the sign up process click here. This will automatically create an outgoing email for you, then:
In due course you will receive an email response from the server with instructions on what to do next.