7th September 2014
Goodwood, West Sussex
104, 76, 44 mile options
GSD Giant website
For Type II Pompe links see the Pompe Pages.
For Type I Von Gierke and Type V McArdle links see their respective sections of this site.
Please click here to report broken links.
CLIMB Children Living with Metabolic Diseases - the National Information Centre for Metabolic Diseases
OMIM On-line Mendelian Inheritance in Man is a searchable database on all of the known genetic diseases. A lot of information but very technical.
The Muscular Dystrophy Association in Australia has information about several types of GSD.
Diseases of the Liver has information about the liver-related forms of GSD.
Children's Liver Disease Foundation - a useful website for liver diseases
Genetics Education Center at Kansas University A good collection of educational resources for genetics.
Contact a Family - for families with disabled children
The Muscular Dystrophy Campaign in the UK works with the muscle-involved types of GSD.
Medic Alert Foundation - identification system for individuals with hidden medical conditions.
France - Association Francophone des Glycogénoses
Germany - Selbsthilfegruppe Glykogenose Deutschland e.V.
Italy - Associazione Italiana Glicogenosi
Scandinavia - Scandinavian Association for Glycogen Storage Disease - (SAGSD)
Spain - Asociacion Española de Enfermos de Glucogenosis (A.E.E.G.)
USA - Association for Glycogen Storage Disease
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271