15th April 2014

International Pompe Day

Press Release


Pompe Update

Healthcare at Home

Deliveries Statement


GSD Giant 2014 

Annual cyclo-sportive.

7th September 2014

Goodwood, West Sussex

104, 76, 44 mile options


GSD Giant website


AGSD-UK Newsletter

We try to publish a newsletter three times each year. These carry information on the annual conference and other events, articles about members and their experiences, medical updates, reports of visits to overseas conferences, fund raising news, etc. (Type II also publish the Pompe Bulletin, see the Pompe Pages.)

We can send you each newsletter as soon as it is published - FREE OF CHARGE - just register with us and give us an email address. Register by clicking on the grey panel at the top right hand side of this page.

To receive the newsletter as a printed copy in the post, to cover costs we request that you become a member of AGSD-UK and pay the small annual subscription. Of course, we would like you to join anyway if you feel able.

It is best to register and receive newsletters promptly by mail (UK addresses only), but they are also uploaded to this web site. Here are the past newsletters as PDF files which will either download to disk or open in a new browser window, depending on how your browser is configured.

You can also refer to the index of articles from previous newsletters.