The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria

 

AGSD-UK Newsletter

We try to publish a newsletter three times each year. These carry information on the annual conference and other events, articles about members and their experiences, medical updates, reports of visits to overseas conferences, fund raising news, etc. (Type II also publish the Pompe Bulletin.)

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To receive the newsletter as a printed copy in the post, to cover costs we request that you become a member of AGSD-UK and pay the small annual subscription. Of course, we would like you to join anyway if you feel able.



PAST ISSUES
It is best to register and receive newsletters promptly by mail (UK addresses only), but they are also uploaded to this web site. Here are the past newsletters as PDF files which will either download to disk or open in a new browser window, depending on how your browser is configured.



You can also refer to the index of articles from previous newsletters.