The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria


Glisten – the AGSD-UK Newsletter

We try to publish a newsletter twice each year. These carry information on the annual conference and other events, articles about members and their experiences, medical updates, reports of visits to overseas conferences, fund raising news, etc. (Type II also publish the Pompe Bulletin.)

We can send you each newsletter as soon as it is published - FREE OF CHARGE - just register with us and give us an email address. Register by clicking on the grey panel at the top right hand side of this page. If you become a member of AGSD-UK and pay the small annual subscription you may opt to receive the newsletter as a printed copy in the post.

Newsletters are uploaded here. You can read on-line in Flipsnack or download a PDF.

You can also refer to the index of articles from previous newsletters.