We try to publish a newsletter twice each year. These carry information on the annual conference and other events, articles about members and their experiences, medical updates, reports of visits to overseas conferences, fund raising news, etc. (Type II also publish the Pompe Bulletin.)
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We can send you each newsletter as soon as it is published - FREE OF CHARGE - just register with us and give us an email address. Register by clicking on the grey panel at the top right hand side of this page. If you become a member of AGSD-UK and pay the small annual subscription you may opt to receive the newsletter as a printed copy in the post.
Newsletters are uploaded here. You can read on-line in Flipsnack or download a PDF.
You can also refer to the index of articles from previous newsletters.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271