The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria


AGSD-UK Conference 2016

Tortworth Court Hotel
Wotton-Under-Edge, Gloucestershire

(Hotel Website)


Weekend of October  15th and 16th 2016

Provisional Programme:

Saturday Sunday

Noon: Registration and buffet lunch 

GSD Type-specific workshops 

Gala Dinner

AGSD-UK Annual General Meeting

AGSD-UK Development update 

GSD Type-specific workshops


Provisional: workshop programmes will available for download closer to the event:

  • Hepatic Workshops, including:
    • Medical Experts Q&A
    • Dr David Weinstein, University of Florida, Update from the GSD Programme
    • Dr. Ulrike Steuerwald, Hannover: 20 years experience of working with Faroese GSD III families
  • Late-Onset Pompe Workshop, including:
    • Ed Silk, Nicola Condon, Ayfer Kahraman  Exercise Workshop
    • Clinical trial updates
    • Medical Ethics
  • McArdle Workshop


  • Gala Dinner on Saturday evening


Registration and bookings


You must register in advance, preferably before September 12th 2016

Conference registration and accommodation should be booked using the forms below or through the AGSD-UK. 

Online Registration Forms:


For further guidance please contact the office on 0300 123 2790 or email


Directions and travel

Hotel travel directions for car, bus, train, and helecopter are available here: