Coming up:

 IGSD Conference,
The Netherlands,
15-17 June 2017.


 Walking with McArdle's course,
 North Wales,
 2-9 August 2017.


 AGSD-UK Annual Conference,
28-29 October 2017.


AGSD-UK Conference 2017

East Midlands Conference Centre

Beeston Lane, The University of Nottingham, NG7 2RJ

(Conference centre and Orchard Hotel website)


Weekend of October 28th and 29th 2017

Provisional Programme:


General Topics Speakers
AGSD-UK Website Launch Fusing Creative
eLearning module for GPs Allan Muir, Charity Director
Ethics of Gene Therapy - Update John Dyck, Canadian Assn. of Pompe
AGSD-UK AGM (Sunday) Mike Porter, Chairman
Safeguarding Jane Lewthwaite
Charity Update Allan Muir, Charity Director
Hepatic Workshop (All Liver GSDs)  
Research Update Dr David Weinstein
Paediatric GSD Dr Efstathia Chronopoulou
GSD 3 Exercise tolerance: Preliminary results Dr Phillip Hennis, UCL
UMC Groningen research Irene Hoogeveen
Hepatic GSD and Sport Dr Ulrike Steuerwald
Sick Day Management & Kids Camps Iris Ferrecchia, RN. President AGSD-US
Medical Expert Panel  
Pompe Workshop  
Novel Therapies and muscle regeneration Dr Pim Pijnappel, Erasmus MC, NL
Newborn Screening - Taiwan Experience Dr Yin-Hsiu Chien, Taiwan University Hospital
Respiritory Support Measures Dr William Kinnear & Juliet Colt, QMC, Notts
The Joan Wright experience Joan Wright
Research Update Dr Reena Sharma, Salford Royal
Exercise Workshop NMC Winsford
Nutrition Workshop Diane Green, Salford Royal
PST projects and Patient Empowerment Pompe Support Team 
International Pompe Association IPA members
McArdle Workshop Chair: Andrew Wakelin
Walking with McArdle's Courses  
Walking in California  
IamGSD - International Association  
Research updates  
Ketogenic Diet  


Registration and bookings

You must register in advance, preferably before September 1st 2017

Conference registration and accommodation should be booked using the forms below or through the AGSD-UK. 

Online Registration Forms:


For further guidance please contact the office on 0300 123 2790 or email


Directions and travel

Hotel travel directions for car, bus and train are available here: