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HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
The AGSD (UK) holds an Annual Conference which usually takes place at a hotel on a Saturday in the autumn. It is attended by people with GSDs, their families and many medical professionals and researchers. The programme normally includes a main speaker on a topic relevant to all, news and updates, the association's AGM and type-specific workshops (see the Workshops section). A creche is provided. Many members like to arrive the previous evening and have a social get-together before the Conference starts in the morning. AGSD (UK) members have expressed a preference for the Annual Conference to be held in a different part of the country each year, so this is what the Executive Committee endeavours to achieve. From this page you can link to details of the next Annual Conference, book for the conference, and review past conferences and download reports.