Site map Search New on the site Contact us
HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
Watch out for full details of the programme, coming soon!.
RAV THAKOR, tel: 01162 711364, email: r.thakor@hotmail.co.uk
Please book DIRECT with: Ramada Jarvis Hotel, Granby Street, Leicester, LE1 6ES Telephone: 0116 257 5540 (ask for "Conferencing") Fax: 0116 255 4040 Email: sales.leicester@ramadajarvis.co.uk. Web: www.ramadajarvis.co.uk 500 metres from Leicester railway station, 600 metres from bus station. 120 car parking spaces, lift access from car park. See hotel web site for full particulars and directions. The special rate for the AGSD (UK) Conference is £64 per room per night including breakfast. Make sure that you ask for this special rate when you book.
FREE to AGSD (UK) members who book in advance. £10 per family to members who do not book and £10 per person to all non-members. Children are free. It greatly helps the volunteers on the registration desk if you book in advance. NB: You must be a current member of AGSD (UK) to take advantage of the free attendance. Membership is £10 per year per person or family. To join please go to the Membership page and complete the registration form.
If you would like your child or children to attend the Creche and Activity Centre PLEASE register in good time as we have to know numbers beforehand.