HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 


 

HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 

Past conferences

Past conferences are listed here. We try to provide a conference report and the presentation made by the main speaker. These presentations are the responsibility of and copyright of their respective authors. To download these reports click on the relevant link. These are PDF files and open in a new browser window.

For reports of the Type Workshops held at the conferences, please see the Workshops section.

Location
Report
General speaker
Speaker report
2008 - Novotel, Reading Download No general speaker -
2007 - Novotel, Reading Download No general speaker -
2006 - Novotel, Bradford Download Tim Emmott, Medic Alert Download
2005 - Hilton Hotel, Milton Keynes Download Ruth Geall and Helen Fowler, Muscular Dystropy Campaign Not Available
2004 - Novotel, Birmingham Download Dr. Chris Hendriksz, Past, present and future of each GSD type Not Available
2003 - Novotel, Bradford Download Dr. John Walter, Manchester Hospital, The state of care for GSD sufferers in the north of England Not Available
2002 - Gateway Hotel, Nottingham Not Available No general speaker -
2001 - Campanile Hotel Birmingham Not Available Alistair Kent, Genetic Interest Group (GIG), Consequences of the Human Genome Project (HGP) on the Development of Treatments for Rare Disorders Download
2000 - Belfry Hotel, Oxford Download Dr. Jane Collins, Screening for Rare Disorders Not Available
1999 - Copthorne Hotel,
Manchester
Not Available Paul Peyton, Chair of Disability, Advice & Welfare Network, St. Helens
Nicola Phillips, Manager for Children with Special Needs, London
Not Available