HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 


 

HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 

Future fundraising events

We are always pleased to hear from anyone who wishes to undertake a fundraising event. Please use the Contact us section.

 

 

The next AGSD (UK) Challenge?


  • In 2010?
  • Mountain Bike?
  • Trek?
  • Horse Ride?
  • Husky Sled?

 

In November 2003 eighteen mountain-bike riders raised over £70,000 for our charity. In March 2006 a smaller group raised another £30,000. Several veterans from those rides have expressed a keen interest in taking part in future events and recently I have been contacted by friends and colleagues who would also like to be considered.

So the trustees are looking to form a small sub-committee of volunteers to help design and organise the next challenge; a small group of enthusiasts who will choose the event and location and between them will take care of the event. The trustees will fully support you and will provide funds for meetings, advertising and recruitment of participants.

Please contact Allan Muir (Pompe Coordinator) if you would like to be involved:
Email: type2@agsd.org.uk

Tel: 01730 231554


 

Future fundraising events

We are always pleased to hear from anyone who wishes to undertake a fundraising event. Please use the Contact us section.

 

 

The next AGSD (UK) Challenge?


  • In 2010?
  • Mountain Bike?
  • Trek?
  • Horse Ride?
  • Husky Sled?

 

In November 2003 eighteen mountain-bike riders raised over £70,000 for our charity. In March 2006 a smaller group raised another £30,000. Several veterans from those rides have expressed a keen interest in taking part in future events and recently I have been contacted by friends and colleagues who would also like to be considered.

So the trustees are looking to form a small sub-committee of volunteers to help design and organise the next challenge; a small group of enthusiasts who will choose the event and location and between them will take care of the event. The trustees will fully support you and will provide funds for meetings, advertising and recruitment of participants.

Please contact Allan Muir (Pompe Coordinator) if you would like to be involved:
Email: type2@agsd.org.uk

Tel: 01730 231554