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HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
This is a great way to collect sponsorship to help the AGSD (UK). It has already been used very successfully by our London Marathon runners. So if you are thinking of a sponsored run, a parachute jump, a mountain climb, or perhaps a head shave (!) - this is the site for you.
As a registered charity AGSD (UK) is signed up with the Just Giving organisation. It operates a web site which makes it easy for people to collect sponsorship of their activities in aid of a charity of their choice.
Just Giving collects back the tax on all donations where Gift Aid is applicable, increasing contributions by 28%. The total monies are transferred straight to AGSD's bank account. There is a small commission payable by AGSD (UK), but this is a very efficient and effective way of handling the whole process. We would encourage you to use it. Please visit the page for AGSD (UK) on the site: www.justgiving.com/agsd Or use this button to create your own fundraising page for your sponsored event:
Or visit Just Giving's home page: www.justgiving.com