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HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
26th April 2009 Mark Upham finished the marathon in 4 hours 20 minutes, raising over £1,700 for AGSD (UK). Said Mark "It's personal to me because Niamh, who is my eldest daughter's best friend, has GSD. Because of the positive outlook that her mum and dad, Tony and Sarah, have you would never know that Niamh has this condition. However, there are a lot of children that have more severe versions of GSD and are unable to lead as full and active life as Niamh. There is limited money spent on research, hence why I wanted to support the association and raise whatever I could. Thanks to all for your support, it really helped when I was struggling."
6th to 13th April 2007 Jane Cargill (Type V, McArdle disease) and friends walked the 95 miles of the West Highland Way from north of Glasgow to Fort William in 8 days, ending in the shadow of Ben Nevis. They put on weight, got bitten by ticks and had one lunch in a culvert sheltering from the rain - but had a great time with champagne at the end and raised £900 for McArdle disease research. Well done all, but especially Jane! They say their next challenge is Ben Nevis in September.
22nd April 2007 Luca Venditto, Gary Baker and James Clarke ran the Flora London Marathon to raise money for AGSD (UK). All completed the 26 miles in gruelling heat. 'The hardest thing I have ever done' said James Clarke. Read all about our three runners. Photos and story here.
3rd to 12th March 2006 Few places on Earth have a greater diversity of natural habitat within as small an area as Costa Rica. It boasts three dozen national parks - comprising cloud, rain and dry forest - 850 species of birds and 1400 types of trees. It is home to a diverse wildlife population including crocodiles, monkeys, and armadillos. What better way to explore the incredibly diverse eco-systems of this beautiful country than by bike? There are no bike lanes and potholes abound but away from the main highways roads are a little travelled and one feels very close to nature.
More photos and Allan Muir's secret diary here.
7th to 16th November 2003 The big idea for an adventurous sponsored bike ride to raise money for research was down to Tim Arthur. After many, many months of planning and committed training, 18 riders set out on an 8 day ride of 300 miles in Vietnam. A fearsome 5,000 foot high pass was tackled on day 4, a typhoon brought torrential rain for 2 days, starts were at 6am to avoid the heat. The group bonded into a team and had a wonderful time, experiencing great hospitality from the Vietnamese and enjoying the 'culture-shock'. Vietnam exceeded expectations in both scenery and the people. The riders raised an astonishing £70,000 plus between them. Photo: Allan Muir. For more info and photos visit www.complexplanes.co.uk/Vietnam