15th April 2014

International Pompe Day

Press Release

 

Pompe Update

Healthcare at Home

Deliveries Statement

 

GSD Giant 2014 

Annual cyclo-sportive.

7th September 2014

Goodwood, West Sussex

104, 76, 44 mile options

 

GSD Giant website
  

 

A story for children affected by liver GSDs

GSD, The Way To Be

Title by: Josiah Ridley (GSD)
Story by: Laurie Fiske
Illustrations by: Ivy Cohen (GSD)

Many thanks to the authors for permission to offer access to this story.

With special thanks to Dr. David A. Weinstein for all his care and support of GSD patients around the world.

Click here to download the PDF.