15th April 2015

International Pompe Day

 

Pompe Update

Healthcare at Home

Deliveries Statement

 

GSD Giant 2015 

Annual cyclo-sportive.

6th September 2015

The Petersfield School

100, 64, 32 mile options

 

GSD Giant website
  

 

A story for children affected by liver GSDs

GSD, The Way To Be

Title by: Josiah Ridley (GSD)
Story by: Laurie Fiske
Illustrations by: Ivy Cohen (GSD)

Many thanks to the authors for permission to offer access to this story.

With special thanks to Dr. David A. Weinstein for all his care and support of GSD patients around the world.

Click here to download the PDF.