Save the date:

 AGSD-UK Conference,
 Wyboston Lakes Executive Centre,  Bedfordshire. 
 20-21 October 2018


 GSD Camp (click here)

 Whitemoor Lakes

 Lichfield, Staffs.

 28-30 September 2018



Pompe News

Healthcare at Home Statement

28th March 2014


Important notice about recent disruptions in the Healthcare at Home delivery service

As you may be aware, some patients have been affected by a disruption in their Healthcare at Home deliveries recently.  This has resulted in delays to some deliveries and has prevented us from giving some patients live updates of their delivery times on our online delivery tracker. Although the majority of our patients are unaffected, we have received a surge of incoming calls from patients requesting delivery time updates. We fully understand how critical it is for patients to receive a regular supply of medication and we also appreciate the inconvenience and stress caused by agreed delivery slots being missed...


Read the full statement here