Coming up:

 IGSD Conference,
The Netherlands,
15-17 June 2017.


 Walking with McArdle's course,
 North Wales,
 2-9 August 2017.


 AGSD-UK Annual Conference,
28-29 October 2017.


Pompe News

Healthcare at Home Statement

28th March 2014


Important notice about recent disruptions in the Healthcare at Home delivery service

As you may be aware, some patients have been affected by a disruption in their Healthcare at Home deliveries recently.  This has resulted in delays to some deliveries and has prevented us from giving some patients live updates of their delivery times on our online delivery tracker. Although the majority of our patients are unaffected, we have received a surge of incoming calls from patients requesting delivery time updates. We fully understand how critical it is for patients to receive a regular supply of medication and we also appreciate the inconvenience and stress caused by agreed delivery slots being missed...


Read the full statement here