15th April 2015

International Pompe Day


Pompe Update

Healthcare at Home

Deliveries Statement


GSD Giant 2015 

Annual cyclo-sportive.

6th September 2015

The Petersfield School

100, 64, 32 mile options


GSD Giant website


Type IX workshop reports

These are reports of the workshops covering Type IX held at the Annual Conference. The reports are the responsibility of and copyright of their respective authors. Where a workshop report is shown as available, click on the download link on the right to view it. These are PDF files and will download to disk or open in a new window depending how your browser is configured.


Medical professionals
Clinical features of Types III and IX, Dr Helen Mundy
Bone mass in GSD I, III and IX patients, Dr Cabrera
Afternoon discussion with Dr Philip Lee
GSD IX (Phosphorylase Kinase Deficiency), Dr Philip Lee