15-17 June 2017.
Walking with McArdle's course,
2-9 August 2017.
AGSD-UK Annual Conference,
28-29 October 2017.
This is a folding 4 page information card for anyone with GSD Type VII. It is small enough to fit in a wallet or purse. Perhaps keep some on the dashboard of the car, in your desk at work, or in your briefcase or handbag. It is a quick way to explain the condition to people. The cards are credit card size and the images here are approx. actual size.
The card is useful for those who get challenged over using disabled parking bays, or just want to explain their situation to someone they meet. That person can then keep the card and, should they wish, look up more information using the link to the website.
The blue section on front and back has a short explanation of the condition. The white section on the back has some pointers on the sort of assistance that we might need. On the inside the card has guidance on what to do in event of an attack of rhabdomyolysis. It has a brief note for emergency doctors with a space for you to write in a name and/or phone number of a doctor who should be contacted in the event of an emergency.
Contact us for your cards
The cards will not last indefinitely (they are paper not plastic) and anyway are meant to be given away.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271