Coming up:

 IGSD Conference,
The Netherlands,
15-17 June 2017.

 

 Walking with McArdle's course,
 North Wales,
 2-9 August 2017.

 

 AGSD-UK Annual Conference,
Nottingham,
28-29 October 2017.

 

101 Tips for a Good Life with McArdle Disease

Also available here - “The McArdle Disease Handbook”

“A great introduction to living with this condition. I wish I had this book 50 years ago.”
–Nancy McVey, USA

“I love this book!”
–Kerry Walsh, UK

“Given how difficult it is to get good information on the condition from medical experts, or get medical experts to listen to what we need when we run into trouble, this book is invaluable!”
–Jenny Coyne, Australia

“Very important concepts (simply explained) that often get lost or never communicated with the diagnosis.”
–Terri Chambers, USA

 

Example page.

Practical tips and straightforward information to help newly diagnosed people and those struggling to manage their condition, or just looking for a few extra tips. Also useful to help explain McArdle's to friends and family.

Edition 1.1 December 2015 (very minor update from edition 1).
First published March 2013, ISBN 978-0-9569658-4-4
164 pages, 105mm (4 inches) square, paperback, AGSD-UK.

Written by Andrew Wakelin
With a foreword by Dr Ros Quinlivan

 

Living with McArdle Disease is challenging in many ways. Running out of energy, cramping and muscle pain are everyday experiences. Even simple tasks like chewing or drying after a shower can be a challenge.

We pass on practical tips which McArdle people have found to be useful. With contributions from McArdle people around the world. The “More than” flash gives the clue – there are actually 125 numbered tips and many are multiple tips in one, so there are around 200 useful ideas in all. We also provide explanations of four key subjects – second wind, the six second rule, your ATP ‘reservoir’ and guidance on emergencies.

This book will help McArdle people to reduce intense ‘anaerobic’ activity and extend more gentle ‘aerobic’ activity. These changes can improve day-to-day life. We also provide references to sources of further information. The aim is to avoid pain and muscle cramps, reduce or eliminate hospital visits and get more out of life.

This handy, pocket-sized book has sections of tips on:

  • Daily living
  • House and garden
  • Physical activity
  • Exercise: good, bad and ugly
  • Walking with McArdle’s
  • Personal care
  • Friends, family and others
  • Eating and diet
  • Driving, travel and transport
  • Medical
  • School, college and work
  • Feeling good

 

Information sections on:

  • About McArdle’s
  • Six second rule
  • Second wind
  • Your ATP ‘reservoir’
  • Reasons to exercise
  • Guidance on emergencies
  • Exercise in school?
  • The McArdle Mantra
  • McArdle’s Glossary
  • References
  • Further information
  • YouTube Channel

 

Now comes complete with two McArdle's Information Cards. (See here.)

Browse and search the book FREE!

The book is fully indexed by Google and is accessible via Google Books. Search the book or browse by scrolling. Click here.

Download a PDF copy FREE!

If you prefer, download a free PDF copy of the book. There are two versions. One is laid out in double page spreads, recommended for viewing on a computer screen. The other is laid out in single pages to view, more suitable for viewing on a smart phone or ebook reader. Click on one of these links to download the PDF of your chosen version. If the book opens in your browser window please then save the PDF to disk, so that you do not need to download it again. Click on one of these links.

Best for computer screens and tablets - Double page spread version - 4mb.
Best for smart phones - Single page to view version. - 4mb

If you like it please consider making a donation to keep our work going,
guideline £2 plus (please mention “McArdle’s 101 Tips”).

Make a donation using Virgin Money Giving

Printed copies to order

One copy is available free of charge to every diagnosed McArdle person in the UK. (If you have not received one, make sure that we have your correct postal address. Click here to email.) For those overseas and anyone wanting further copies, these are available to order here. List price is £4.50, but it is available from AGSD-UK at £2.80 plus post and packing.

Quantity Book only Including post and packing
Postal area: UK Europe RoW†
 1 copy  £2.80  £4.30  £6.30  £6.90
 2 copies  £5.40  £7.60  £9.70  £10.90

£1 = approx. $1.60 US.       Rest of the World.

To order, select your quantity and postal area in the pop up list below, then click on the 'Pay Now' button. On the next page you can pay with a PayPal account or look for the link 'Pay with a Debit or Credit Card' to reveal that part of the page).

 

If you wish to order more than 2 copies, these are available at the basic book cost plus post and packing costs. Please contact us for a quotation.

Books are posted using the Standard Royal Mail service which suggests delivery times of 5 to 7 days for overseas packages. 

Tracking would add an additional £5 to the postage costs and so is not currently available.

For quotes or for any problems or questions, please contact the Office using our contact form.


Updated: 14/07/2016