15-17 June 2017.
Walking with McArdle's course,
2-9 August 2017.
AGSD-UK Annual Conference,
28-29 October 2017.
Over 9 and 10 April 2011 a group of supporters from AGSD-UK walked the route of the London Marathon as a fundraising event. However, for three people the 26.2 mile route was an extra special challenge - as they had McArdle Disease - Stacey Reason, Tim Johnson and Andrew Wakelin.
Stacey and Andrew 'Tweeted' throughout the walk, having only worked out how to use it the night before! Here are their Tweets (times are GMT, actual were an hour earlier on BST) and some photos Tweeted direct from Andrew's iPhone. They were accompanied by two non-McArdleites - Stacey's husband Jorge and Andrew's sister Sally. Many thanks to all who sent messages of support to keep us going.
Stacey and Jorge raised an amazing £2,500; Sally managed about £500 and Andrew about the same again after a last minute entry.
Visit Stacey and Jorge's JustGiving page
Visit Sally's JustGiving page
We started from the blue start at the Blackheath Gate to Greenwich Park."
Click on the location links to view a map of where we were at the time. (Unfortunately we didn't think of switching that on until well into day two.)
Stacey and Andrew are walking the route of the London Marathon this weekend (9 and 10 April 2011) in support of McArdle Disease.
8:37 PM Apr 8th via web
We are meeting at the Blackheath Gate to Greenwich Park at 10.30 for 11.00 start.
8:58 PM Apr 8th via
Jorge (Stacey's husband) and Sally (Andrew's sister) are also walking, so there are 4 of us from the McArdle community on this AGSD-UK walk.
11:25 PM Apr 8th via web
Finishing breakfast and getting kitted up. Scorching hot day so difficult balance between taking all that we need and not carrying too much.
10:32 AM Apr 9th via Twitter for iPhone
We are just waiting for a bus to take us to the start point. We weren't keen on adding another 1.2 miles each way!
11:09 AM Apr 9th via Twitter for iPhone
This is Stacey studying the route as we wait for the off.
11:36 AM Apr 9th via Twitter for iPhone
We are off. Only 26.2 miles to go!
12:13 PM Apr 9th via Twitter for iPhone
About 40 people started, with us at the front. Within 3 minutes everyone had passed us and in 5 minutes all were out of sight.
12:51 PM Apr 9th via Twitter for iPhone
2 miles down and it's hot but Steve tells us we have done the worst hill. Good job, as Andrew was struggling.
1:22 PM Apr 9th via Twitter for iPhone
We are beside the Thames at Woolwich and just over quarter of today's distance done.
1:39 PM Apr 9th via Twitter for iPhone
Strangely they didn't close the roads for us. But at least this photo proves we really are on the Marathon route.
3:17 PM Apr 9th via Twitter for iPhone
Found out there is a young man with McArdle's on the walk. But he's way ahead of us oldies. Look forward to meeting you at the end Tim.
3:3:31 PM Apr 9th via Twitter for iPhone
Four happy walkers set off after lunch, river and the City behind.
3:42 PM Apr 9th via Twitter for iPhone
Limited lunch to 1/2 hour so as to avoid losing second wind. Much easier getting going this afternoon.
4:14 PM Apr 9th via Twitter for iPhone
Much nicer area this afternoon with some trees for shade. Pavement is hard on the feet and legs, but Jorge and Sally feel it just as much.
5:16 PM Apr 9th via Twitter for iPhone
We are on the last half of the last page of today's map! Looking forward to that view of Tower Bridge!
9 April 2011 16:55:52 via Twitter for iPhone
We finished just before 5.30 after crossing Tower Bridge. All shattered, tomorrow seems impossible. Going for a drink!
9 April 2011 17:36:27 via Twitter for iPhone
Turning in for a relatively early night. Lots of aches but nothing specific to McArdle's. Thanks for the comments. Determined to complete.
9 April 2011 22:47:15 via Twitter for iPhone
All feeling pretty good. Waiting for train then bus to get us back to Tower Bridge area for the start. With commute it will be a 15 mile day.
10 April 2011 09:17:35 via Twitter for iPhone
We'd both prefer some hills. And the hard surfaces are horrible. We'll make it though.
10 April 2011 09:22:56 via Twitter for iPhone
Desperate search for toilets before we start. It's a great day again, blue sky and sun but a cool breeze. Forecast is +2 deg on yesterday.
10 April 2011 10:21:52 via Twitter for iPhone
Oh dear a marathon climb!
10 April 2011 11:34:55 via Twitter for iPhone
Our exhuberance got the better of us leading to a wrong turn and extra mileage at Heron Quay! Bring it on London!!
10 April 2011 12:45:38 via Twitter for iPhone
6 miles down. Lunch stop at Canary Wharf having done a circuit of Docklands.
10 April 2011 13:19:56 via Twitter for iPhone from Tower Hamlets
Just realised we can give a link to where we are.
10 April 2011 13:21:49 via Twitter for iPhone from Tower Hamlets
In the 20 mins we stopped Stacey's hips are pretty seized up, but we are on our way again.
10 April 2011 13:43:31 via Twitter for iPhone from Tower Hamlets
We are in a grim area with heavy traffic, just wish we were on the canal tow path like this.
10 April 2011 14:44:45 via Twitter for iPhone from Tower Hamlets
Back at Tower Bridge. En route to London Bridge - 23 mile mark. Stacey thinks we may just 'fall down' at London Bridge!!
10 April 2011 17:02:46 via Twitter for iPhone from Tower Hamlets
10 April 2011 17:02:46 via Twitter for iPhone from City of London
Entering Westminster. London Eye wheel across the Thames. Not long now.
10 April 2011 17:02:46 via Twitter for iPhone from Victoria Embankment
McArdle's landmark - the hospital Dr. Brian McArdle worked at when he discovered McArdle Disease in 1951.
10 April 2011 17:09:05 via Twitter for iPhone from Westminster Bridge
We're there. Done. 26 miles ! Thank goodness. And we weren't last!
10 April 2011 17:29:26 via Twitter for iPhone from Westminster, London
That's better after a few beers. Well done to Tim, also with McArdle's, who finished well before us!
10 April 2011 18:12:47 via Twitter for iPhone from here
Sally, Stacey and Jorge at Henry's Bar.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271