Walking with McArdle's
[Map of area]
15-17 June 2017.
Walking with McArdle's course,
2-9 August 2017.
AGSD-UK Annual Conference,
28-29 October 2017.
When walking in a group it is very easy for us to damage ourselves as we do not want to hold people back, make a fuss, etc. Even though we know we have to say something, we sub-consciously suppress that and do too much, go those few yards too far before stopping. The result is a painful fixed muscle contracture which can last for hours or days. If it is severe it can make us feel very unwell and even land us in hospital.
All the walkers in our group need to protect themselves from possible muscle damage. Apart from good techniques, the key to this is a set of rules we need to stick to.
The more that those of us with McArdle's walk the more we get to understand our muscles, to know the signs, to know what we can do and can't do, to know how to avoid problems. By walking as a group we will similarly learn about the group dynamics and will be able to pass these lessons on to others.
We also have some guidance notes for walking partners who do not have McArdle Disease, to help them understand our needs. Click here.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271