15-17 June 2017.
Walking with McArdle's course,
2-9 August 2017.
AGSD-UK Annual Conference,
28-29 October 2017.
This is a folding 4 page card and is small enough to fit in a wallet or purse. Perhaps keep some on the dashboard of the car, in your desk at work, or in your briefcase or handbag. It is a quick way to explain the disease to people. The cards are credit card size.
The card is useful if you get challenged over using a disabled parking bay, or just want to explain your situation to someone you meet. The blue section on front and back has a short explanation of McArdle Disease. The white section on the back has some pointers on the sort of assistance that you might need.
On the inside the card has guidance on what to do in event of an episode of rhabdomyolysis. It has a brief note for emergency doctors with a space for you to write in a name and/or phone number of a doctor who should be contacted in the event of an emergency.
"The card was a great help when I had painful muscle spasms and my CK jumped to 16,000. I didn't have to wait hours before treatment was started."
Judy Hudson, Canada.
"I have had two recent emergency visits to hospital. The ER staff thanked me for bringing the card with me and said it was very helpful."
Harriet McGinnis, USA.
Download a PDF to print yourself
You can download the PDF, print the card, fold, stick and trim it to make your own card. (Download here.)
Ordering printed cards
Note that two cards come with the book "101 Tips for a Good Life with McArdle Disease". (See here.)
The cards will not last indefinitely (they are not plastic) and anyway are meant to be given away. Postage costs are a major part of the total cost, so best value is obtained by ordering in quantity:
Please use this on-line form to order the quantity you require. The prices are shown again on the payment page. You may pay by credit card or debit card, or from a PayPal account.
†Rest of the World.
£1 Sterling = approx. $1.60 US.
Last reviewed: 13 October 2015.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271