15-17 June 2017.
Walking with McArdle's course,
2-9 August 2017.
AGSD-UK Annual Conference,
28-29 October 2017.
This booklet is available for patients and their GPs. We issue two copies to all UK McArdle people so that they may give one to their GP and retain one.
20 pages. Size 210x100mm. Edition 2.2 December 2015.
The booklet is based on the experiences of people with McArdle’s and the issues that can arise in primary care, hospital visits and seeing other consultants. It offers referenced information to assist medical staff in looking after people with McArdle’s. It is a quick guide to McArdle’s, and is focussed on primary care issues with pages on Creatine Kinase levels and emergency visits to hospital with rhabdomyolysis. It addresses all the common misconceptions, confusions and mistakes. The intention is that GP should hold a copy as should the McArdle person to use whenever they are in a medical consultation.
Whilst this is aimed at a UK audience, the content will be very helpful to people with McArdle’s in other countries. A PDF copy of the booklet may be downloaded free of charge. This is a 1.1mb file.
Click here to download the PDF.
The booklet is also available for online browsing on Google Books.
Two copies are available free of charge to every diagnosed McArdle person in the UK. For others, order your two copies here – one for your GP and one for you to keep.
£1 = approx. $1.60 US. †Rest of the World.
To order, select your quantity and postal area in the pop up list below, then click on the 'Pay Now' button. On the next page you can select to pay with a Debit or Credit Card, or a PayPal account.
For any problems or questions, please contact firstname.lastname@example.org
Updated: 6 February 2016.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271