15-17 June 2017.
Walking with McArdle's course,
2-9 August 2017.
AGSD-UK Annual Conference,
28-29 October 2017.
The AGSD (UK) conducted an on-line survey of McArdle patients, instigated by Nick Owston. Patients from all around the world participated in June 2000. The collected data was analysed and written up into a detailed report which was published in November 2004.
The report provides an excellent insight into how the disease affects the lives of patients. It also provides statistical analysis of the results - for example, 94% of patients experience pain in everyday activities such as chewing, writing and cleaning their teeth.
A copy of the report, in PDF format, may be downloaded from this link.
Example page shown on right.
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271