GSD Giant
Sunday 2nd September 2012 Goodwood, West Sussex. A charity sportive in the heart of the South Downs National Park. More here
AGSD-UK Annual Conference 2012 Bedfordshire

A date for your diary - Sat 29 and Sun 30 September. A fabulous location for a great weekend. More details.

McArdle patients’ survey

Example page

The AGSD (UK) conducted an on-line survey of McArdle patients, instigated by Nick Owston. Patients from all around the world participated in June 2000. The collected data was analysed and written up into a detailed report which was published in November 2004.

The report provides an excellent insight into how the disease affects the lives of patients. It also provides statistical analysis of the results - for example, 94% of patients experience pain in everyday activities such as chewing, writing and cleaning their teeth.

A copy of the report, in PDF format, may be downloaded from this link.



Example page shown on right.