Coming up:

 IGSD Conference,
The Netherlands,
15-17 June 2017.

 

 Walking with McArdle's course,
 North Wales,
 2-9 August 2017.

 

 AGSD-UK Annual Conference,
Nottingham,
28-29 October 2017.

 

McArdle links

The following links may be of interest to those learning about McArdle disease.
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Medical resources

Nature: Clinical Practice Neurology - McArdle Disease, what do neurologist need to know?
www.nature.com/nrneurol/journal/v4/n10/full/ncpneuro0913.html

PatientPlus - an article on McArdle disease aimed at GPs
www.patient.co.uk/showdoc/40001410/#notes

From Sweden - one of the clearest all-round explanations of McArdle disease 
www.socialstyrelsen.se/rarediseases/mcardledisease

A clear but technical overview of McArdle disease from Dr Ronald G Haller, Southwestern Medical Centre, Dallas 
http://ieemphd.com/NMC%20Homepage/myophosphorylase_deficiency.htm

A rather technical article on the GSD and Type V 
www.emedicine.com/MED/topic911.htm

Online Mendelian Inheritance in Man - in depth genetic and medical information
www.ncbi.nlm.nih.gov/sites/entrez



Research

Report of McArdle Workshop of the European Neuromuscular Centre, October 2006 
www.enmc.org/workshop/?id=63&mid=54



Support

Muscular Dystrophy Campaign - excellent factsheet on McArdle disease 
www.muscular-dystrophy.org



Patients' pages

An occasional blog from Andy Williams, a British McArdle patient living in Singapore 
mcardlesandme.blogspot.com/

A comprehensive site from Luke Nathaniel
mcardlesdisease.org/

Personal reflections on McArdle's disease by Bill Corr
phosphorylase.wordpress.com

A personal McArdle site by Stan Noll 
www.geocities.com/glycogenstorage



Miscellaneous

Who Named It? - information on Brian McArdle
www.whonamedit.com/doctor.cfm/2191.html

Wikipedia - entry on McArdle Disease (GSD Type V)
http://en.wikipedia.org/wiki/Glycogen_storage_disease_type_V