Coming up:

 AGSD-UK Annual Conference,
Nottingham,
28-29 October 2017.

 

Two introductions to McArdle Disease

A presentation by Dr Ros Quinlivan, neuromuscular consultant

A talk given by Dr Ros Quinlivan (who leads the national McArdle Disease service at the National Hospital for Neurology and Neurosurgery, London) at the European Alliance of Neuromuscular Disorders Associations (EAMDA) conference in Ljubljana in September 2014. The talk gives a round up of the current knowledge on McArdle's and briefly explains about the Euromac Registry.

Video link: McArdle presentation.

The above video is hosted on the EAMDA Ljubljana conference channel on Youtube.

A video introduction by Dr Ros Quinlivan

This is a useful introduction for anyone who is newly diagnosed or who has never had McArdle Disease explained by an expert in the condition. The causes, symptoms, diagnosis and management of McArdle Disease are explained. This video was created in 2010 by CLIMB, as part of a series funded by the UK Department of Health. We apologise for the poor production and sound quality, but the content is good. Running time approx. 16 minutes.

Our thanks to CLIMB (Children Living with Inherited Metabolic Disease) and to Dr Ros Quinlivan, who leads the national McArdle Disease service at the National Hospital for Neurology and Neurosurgery, Queen Square, London WC1.

Video link: Introduction to McArdle Disease.

This video is hosted on the AGSD-UK McArdle Disease channel on Youtube.