The UK McArdle Clinic

The UK McArdle Clinic is located at the National Hospital for Neurology and Neurosurgery in London. Dr Ros Quinlivan is the lead clinician.

Those McArdle people wishing to attend the clinic should telephone Dr Quinlivan's secretary on 020 3448 8132 to make an appointment.

The AGSD-UK is very pleased to be able to support the UK McArdle Clinic which was established in 1996 in Oswestry and is now located in London at the MRC Centre for Neuromuscular Diseases, part pf the National Hospital for Neurology and Neurosurgery in Queen Square, London WC1.

This is the UK's only clinic for McArdle disease and patients travel from all over the country, and indeed other countries. It is an invaluable resource for our patient community and is a centre of excellence with approx. 100 patients. In fact, we understand that no other country operates a clinic such as this, with patients elsewhere being seen individually by consultants. Some countries are hoping to adopt the UK model.

There is significant benefit for patients (and their families) in getting together at these clinics. But perhaps even more importantly the clinic approach enables patients to be seen by a range of professionals in one visit. They in turn build their understanding of the disease by seeing so many patients.

The AGSD-UK encourages everyone with a diagnosis of McArdle disease to ask their general practitioner to refer them to the UK McArdle clinic.

• About the clinic and its aims
• What happens at the clinic?
• MRC Centre for Neurology and Neurosurgery web site
• National Hospital for Neurology and Neurosurgery web site