The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria

 

Type V (McArdle Disease) workshop reports

These are reports of the Type V McArdle's workshops held at the Annual Conference. The reports are the responsibility of and copyright of their respective authors. Where a workshop report is shown as available, click on the download link on the right to view it. These are PDF files and will download to disk or open in a new window depending how your browser is configured.

Year
Medical professionals
Report
2014
Jatin Pattni, Management of McArdle Disease
2014
Stacey Reason, Canada, mHealth Survey Results
2013
Dr. Ros Quinlivan, McArdle Disease amd Related Disorders Highly Specialised Service
2013
Dr. Renata Scalco, Pilot Study of Sodium Valproate
2008
Prof. John Vissing, University of Copenhagen, Diagnostic exercise tests and treatment options in McArdle Disease
2007
Dr. Ros Quinlivan, Wolfson Centre for Inherited Neuromuscular Disease, The work of the McArdle Disease Service
2007
Kathryn Wright, CIND Oswestry, A cell culture model of McArdle’s Disease
2007
Kathryn Wright, CIND Oswestry, World Muscle Society International Congress, a report from a McArdle's perspective
2006
Kathryn Wright, CIND Oswestry, progress towards a model for developing therapies for McArdle disease
2005
Dr. Ros Quinlivan on behalf of Prof. John Howell, Murdoch University, Australia
2005
Dr. Ros Quinlivan - plans for Centre for Inherited Neuromuscular Disease
2004
Andrew Wakelin, AGSD Type V Rep.: Workshop report
2004
Dr. Richard Godfrey, British Olympic Team: Growth hormone response to exercise in McArdle patients
2004
Dr. John Buckley, Exercise Physiologist: McArdle Walking test - results 1999-2004
2003
William Gibbs and Dr. John Buckley, Exercise Physiologist
2001
Nick Owston and Dr. John Buckley, Exercise Physiologist
2000
Non-invasive Diagnosis by Smell (a research project), Dr A M Pisanelli, and report by Nick Owston
1999
Dr Ros Quinlivan and Dr Alf Slonim, plus report by Nick Owston