The AGSD-UK 2015 conference was a great success:

I can't thank you and the AGSD-UK team enough for the superb organisation of the conference this year! The workshops and range of speakers was fantastic. It was so good to meet the key physicians who are helping with the condition. Another incredible outcome of the conference was that our daughter made two friends the same age as her whom we intend to meet with and to keep in contact with. As the condition is rare it is invaluable that she has friends to share her struggles with. It is also great that my husband and I now have friends who are GSD parents too! What a fantastic thing you do - thank you so much, from all of us!
– Victoria


Type V (McArdle Disease) workshop reports

These are reports of the Type V McArdle's workshops held at the Annual Conference. The reports are the responsibility of and copyright of their respective authors. Where a workshop report is shown as available, click on the download link on the right to view it. These are PDF files and will download to disk or open in a new window depending how your browser is configured.

Medical professionals
Jatin Pattni, Management of McArdle Disease
Stacey Reason, Canada, mHealth Survey Results
Dr. Ros Quinlivan, McArdle Disease amd Related Disorders Highly Specialised Service
Dr. Renata Scalco, Pilot Study of Sodium Valproate
Prof. John Vissing, University of Copenhagen, Diagnostic exercise tests and treatment options in McArdle Disease
Dr. Ros Quinlivan, Wolfson Centre for Inherited Neuromuscular Disease, The work of the McArdle Disease Service
Kathryn Wright, CIND Oswestry, A cell culture model of McArdle’s Disease
Kathryn Wright, CIND Oswestry, World Muscle Society International Congress, a report from a McArdle's perspective
Kathryn Wright, CIND Oswestry, progress towards a model for developing therapies for McArdle disease
Dr. Ros Quinlivan on behalf of Prof. John Howell, Murdoch University, Australia
Dr. Ros Quinlivan - plans for Centre for Inherited Neuromuscular Disease
Andrew Wakelin, AGSD Type V Rep.: Workshop report
Dr. Richard Godfrey, British Olympic Team: Growth hormone response to exercise in McArdle patients
Dr. John Buckley, Exercise Physiologist: McArdle Walking test - results 1999-2004
William Gibbs and Dr. John Buckley, Exercise Physiologist
Nick Owston and Dr. John Buckley, Exercise Physiologist
Non-invasive Diagnosis by Smell (a research project), Dr A M Pisanelli, and report by Nick Owston
Dr Ros Quinlivan and Dr Alf Slonim, plus report by Nick Owston