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HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
The Association for Glycogen Storage Disease (UK) provides support and help for individuals and families affected by GSD. It does this by putting people in contact, providing information, issuing Newsletters and holding Conferences and Workshops. Find out more about us and what we do by exploring the menus above or using the site map. Glycogen is a stored form of glucose, which is used as a fuel for energy. Glycogen Storage Disease (GSD) occurs when there is an absence or deficiency of an enzyme needed to produce or break down glycogen in the body. GSD primarily affects the liver and/or muscles. For information about the different types of GSD use the links in the left panel.
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