15-17 June 2017.
Walking with McArdle's course,
2-9 August 2017.
AGSD-UK Annual Conference,
28-29 October 2017.
The National GSD Audit is an AGSD-UK project to establish a secure database of people living with GSD in the UK. Once we have established a better picture of the numbers and locations of people living with these conditions we hope to follow up with small, targeted surveys to learn about the care people receive, both for their medical and non-medical needs.
We are asking that every household in the UK living with GSD in their immediate family should complete the registration form below, even if they are already registered as members of the Association; this is to ensure that we have the latest contact information for everybody.
To respond to our request for information please click on the link below to open our secure online form.
Thank you for your help with this important project
Association for Glycogen Storage Disease (UK) LimitedRegistered Charity No 1132271