HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 


 

HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 

About workshops

The AGSD (UK) holds workshops on different GSD types, usually during its Annual Conference. Workshops are normally chaired by the Type Representative and trhe speakers are invited medical professionals. As well as being informative, they are also a good opportunity for people with each type to get together and dissuss topics of shared interest.

From here you can access reports and presentations from Workshops dating back to 1995. Workshop report entries are organised by GSD type and show the year and speaker/s. Note that some workshops cover a number of GSD types. To read a report click on its link, it will either download to disk or open in a new window depending on the configuration of your browser.

 

 

About workshops

The AGSD (UK) holds workshops on different GSD types, usually during its Annual Conference. Workshops are normally chaired by the Type Representative and trhe speakers are invited medical professionals. As well as being informative, they are also a good opportunity for people with each type to get together and dissuss topics of shared interest.

From here you can access reports and presentations from Workshops dating back to 1995. Workshop report entries are organised by GSD type and show the year and speaker/s. Note that some workshops cover a number of GSD types. To read a report click on its link, it will either download to disk or open in a new window depending on the configuration of your browser.