AGSD-UK Conference 2010

The Conference will be in central London on weekend of 20th-21st November. More details soon.

 

Walk over Wales... every step counts
 2 July to 2 August 2010
Sponsored walk raising money for AGSD-UK. 210 miles. Details.

 

Walking with McArdle's - Wales
An opportunity to enjoy a week's walking holiday in Snowdonia and learn how best to cope with McArdle's. July 2011. Details.

 

 


 

AGSD-UK Conference 2010

The Conference will be in central London on weekend of 20th-21st November. More details soon.

 

Walk over Wales... every step counts
 2 July to 2 August 2010
Sponsored walk raising money for AGSD-UK. 210 miles. Details.

 

Walking with McArdle's - Wales
An opportunity to enjoy a week's walking holiday in Snowdonia and learn how best to cope with McArdle's. July 2011. Details.

 

 

The McArdle Clinic

UPDATE: THE MCARDLE CLINIC IS MOVING TO THE NATIONAL HOSPITAL FOR NEUROLOGY AND NEUROSURGERY AT QUEEN SQUARE, LONDON WC1. THIS SHOULD BE EFFECTIVE FROM AUTUMN 2010 AND DR ROS QUINLIVAN WILL STILL BE THE LEAD CLINICIAN.

National Hospital web site

The clinic on 24 August 2010 will still be at Oswestry.

The AGSD (UK) is very pleased to be able to support the McArdle Clinic at the Robert Jones and Agnes Hunt Hospital in Oswestry. This is the UK's only clinic for McArdle disease and patients travel from all over the country. It is an invaluable resource for our patient community and is a centre of excellence. In fact, we understand that no other country operates a clinic such as this, with patients elsewhere being seen individually by consultants.

There is significant benefit in having patients (and their families) get together at these clinics. But perhaps even more important is the fact that the clinic approach enables patients to be seen by a range of professionals in one visit. They in turn build their understanding of the disease by seeing so many patients.

The AGSD (UK) encourages everyone with a diagnosis of McArdle disease to ask their general practitioner to refer them to the McArdle clinic.

The McArdle Clinic

UPDATE: THE MCARDLE CLINIC IS MOVING TO THE NATIONAL HOSPITAL FOR NEUROLOGY AND NEUROSURGERY AT QUEEN SQUARE, LONDON WC1. THIS SHOULD BE EFFECTIVE FROM AUTUMN 2010 AND DR ROS QUINLIVAN WILL STILL BE THE LEAD CLINICIAN.

National Hospital web site

The clinic on 24 August 2010 will still be at Oswestry.

The AGSD (UK) is very pleased to be able to support the McArdle Clinic at the Robert Jones and Agnes Hunt Hospital in Oswestry. This is the UK's only clinic for McArdle disease and patients travel from all over the country. It is an invaluable resource for our patient community and is a centre of excellence. In fact, we understand that no other country operates a clinic such as this, with patients elsewhere being seen individually by consultants.

There is significant benefit in having patients (and their families) get together at these clinics. But perhaps even more important is the fact that the clinic approach enables patients to be seen by a range of professionals in one visit. They in turn build their understanding of the disease by seeing so many patients.

The AGSD (UK) encourages everyone with a diagnosis of McArdle disease to ask their general practitioner to refer them to the McArdle clinic.