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HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
Exercise is vitally important to people with McArdle disease. It is essential to avoid anaerobic activity such as lifting heavy weights, sprinting or just opening a new jam jar! This is because anaerobic activity beyond about 6 to 10 seconds needs a supply of glycogen, which is not available in McArdle's. Without the supply of glycogen the muscle is damaged and a cramp develops. However, aerobic exercise such as walking is highly beneficial. It helps to improve aerobic capacity and it helps keep your weight under control. Follow these links to read some more about exercise for people with McArdle's.