A marathon for AGSD-UK
 Angela Regazzoni is running the London Marathon on 22 April. Read more and sponsor her - click here.
AGSD-UK Annual Conference 2012 Bedfordshire

A date for your diary - Sat 29 and Sun 30 September. A fabulous location for a great weekend. More details.
Pilot drug trial in McArdle's
 The MDC has announced a major grant for a pilot drug trial in McArdle Disease. You can read more about the grant here.

 

 

McArdle patients’ survey

Example page

The AGSD (UK) conducted an on-line survey of McArdle patients, instigated by Nick Owston. Patients from all around the world participated in June 2000. The collected data was analysed and written up into a detailed report which was published in November 2004.

The report provides an excellent insight into how the disease affects the lives of patients. It also provides statistical analysis of the results - for example, 94% of patients experience pain in everyday activities such as chewing, writing and cleaning their teeth.

A copy of the report, in PDF format, may be downloaded from this link.



Example page shown on right.