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AGSD-UK Conference 2010
The Conference will be in central London on weekend of 20th-21st November. More details soon.
Walk over Wales... every step counts 2 July to 2 August 2010 Sponsored walk raising money for AGSD-UK. 210 miles. Details.
Walking with McArdle's - Wales An opportunity to enjoy a week's walking holiday in Snowdonia and learn how best to cope with McArdle's. July 2011. Details.
The AGSD (UK) conducted an on-line survey of McArdle patients, instigated by Nick Owston. Patients from all around the world participated in June 2000. The collected data was analysed and written up into a detailed report which was published in November 2004.
The report provides an excellent insight into how the disease affects the lives of patients. It also provides statistical analysis of the results - for example, 94% of patients experience pain in everyday activities such as chewing, writing and cleaning their teeth.
A copy of the report, in PDF format, may be downloaded from this link.
Example page shown on right.