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AGSD-UK Conference 2010
The Conference will be in central London on weekend of 20th-21st November. More details soon.
Walk over Wales... every step counts 2 July to 2 August 2010 Sponsored walk raising money for AGSD-UK. 210 miles. Details.
Walking with McArdle's - Wales An opportunity to enjoy a week's walking holiday in Snowdonia and learn how best to cope with McArdle's. July 2011. Details.
The following links may be of interest to those learning about McArdle disease. Links open in a new tab or window in your browser. Please click here to report broken links.
Medical resources
Nature: Clinical Practice Neurology - McArdle Disease, what do neurologist need to know? www.nature.com/nrneurol/journal/v4/n10/full/ncpneuro0913.html
PatientPlus - an article on McArdle disease aimed at GPs www.patient.co.uk/showdoc/40001410/#notes
From Sweden - one of the clearest all-round explanations of McArdle disease www.socialstyrelsen.se/english/international/rarediseases/mcardledisease
A clear but technical overview of McArdle disease from Dr Ronald G Haller, Southwestern Medical Centre, Dallas http://ieemphd.com/NMC%20Homepage/myophosphorylase_deficiency.htm
A rather technical article on the GSD and Type V www.emedicine.com/MED/topic911.htm
Online Mendelian Inheritance in Man - in depth genetic and medical information www.ncbi.nlm.nih.gov/sites/entrez
Research
Report of McArdle Workshop of the European Neuromuscular Centre, October 2006 www.enmc.org/workshop/?id=63&mid=54
Support
Muscular Dystrophy Campaign - excellent factsheet on McArdle disease www.muscular-dystrophy.org
Patients' pages
An occasional blog from Andy Williams, a British McArdle patient living in Singapore mcardlesandme.blogspot.com/
A comprehensive site from Luke Nathaniel mcardlesdisease.org/
Personal reflections on McArdle's disease by Bill Corr phosphorylase.wordpress.com
A personal McArdle site by Stan Noll www.geocities.com/glycogenstorage
Miscellaneous
Who Named It? - information on Brian McArdle www.whonamedit.com/doctor.cfm/2191.html