HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 


 

HARRISON FORD IN GSD FILM
Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.

 

MCARDLE HANDBOOK PROJECT
Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.

 

Type I - newsletter articles index

This index is designed to help you find articles which may be of interest to you from past issues of the Newsletter. It refers you to the appropriate issue of the Newsletter and the page number. When you have identified the article you need, make a note of the issue and then download it from the Newsletter page.

 

Article title
Author
Issue
Page  
Cornflour on Free Prescription Ann Phillips Spring 2007 5
Glycosade Vitaflow International Ltd Spring 2009 12
In memory of Peter Phillips   Spring 2009 5
Possible treatment approaches and therapeutic interventions Dr. Priya Kishnani, Duke University Spring 2009 13
Running in Flora London Marathon 2007 Gary Baker Spring 2007 5

 

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