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HARRISON FORD IN GSD FILM Extraordinary Measures starring Harrison Ford, based on the book "The Cure" it tells the story of John Crowley and his part in funding the development of an enzyme-replacement therapy for people with Pompe Disease. Two of John's children suffer from Pompe (GSD Type II). UK release 26th February.
MCARDLE HANDBOOK PROJECT Thanks to the Vodafone Foundation Kathryn Wright is preparing a Handbook for people with McArdle's. More details here.
The following links may be of interest to those learning about GSD Type I. Links open in a new tab or window in your browser. Please click here to report broken links.
Medical resources
Emedicine - a description of Type I in plain English emedicine.medscape.com/article/949937-overview
The Children's Fund for Glycogen Storage Disease Research, Inc - a USA based organisation promoting research into GSD Type I www.curegsd.org
Online Mendelian Inheritance in Man - medical resource on Type I www.ncbi.nlm.nih.gov/entrez/dispomim.cgi?id=232200