Save the date:

 AGSD-UK Conference,
 Wyboston Lakes Executive Centre,  Bedfordshire. 
 20-21 October 2018


 GSD Camp (click here)

 Whitemoor Lakes

 Lichfield, Staffs.

 28-30 September 2018




The AGSD-UK provides support and help for individuals and families affected by Glycogen Storage Disease (GSD). We put people in contact with others to reduce isolation, we provide information through this website, books, leaflets and newsletters, and we hold conferences and workshops. Find out more about us and what we do by exploring the menus above or using the site map.

Glycogen is a stored form of glucose, which is used as a fuel for energy. Glycogen Storage Disease occurs when there is an absence or deficiency of an enzyme needed to produce or break down glycogen. GSD primarily affects the liver and/or the muscles.


Order form

Order your 2019 Calendars here

 25% Black Friday Discount until 1st December


Conceived by Gemma Seyfang, our 2019 calendar was created through a competition asking those in the GSD community to choose a photo/quote of what they thought represented Achievements, Goals, Success and Determination.

We are delighted with the final selection which was chosen by the medical team at Addenbrookes Hospital by the Cambridge Clinical Research Centre.

Calendars cost £10 each and make a perfect gift and can be ordered using this form

Order form

AGSD-UK Recipe Book

25% Black Friday Discount until 1st December


Conceived and Created by PST Members:


Ben Parker


Jane Lewthwaite

Dietary analysis provided by dietitian Louise Robertson 


Recipe books cost £8 each and make a perfect gift and can be ordered using this form


Run for the AGSD-UK

There are 5k runs all around the country that you can join in the name of the AGSD-UK. A full list of venues is listed here.

Once you have selected your event contact the office and we'll make sure we have places available for you and anyone else you'll be running with.

Contact Fundraising for more information.

Bake or Burn Campaign - Making Calories Count!

Whether you prefer to bake-off or burn-off calories, you can join our calorific campaign to raise funds and awareness for kids living with GSD.
BAKING  - Self-raising awareness
If you prefer baking then why not hold a cake sale for your friends or work colleagues? Of course you don’t have to make cakes; you can cook anything you like; how about selling hot soup and bread rolls after a brisk country walk? Or hold a “Come Dine with Me” evening for friends and neighbours?
BURNING – £ for lb?
If you’re more of the active type; then try a sponsored walk, run, cycle, swim or any other activity to burn off a few calories. You can join an organised event or make up one of your own with family and friends.
Contact Fundraising to discuss how we can help you make every calorie count