Save the date:

 AGSD-UK Conference,
 Wyboston Lakes Executive Centre,  Bedfordshire. 
 20-21 October 2018


 GSD Camp (click here)

 Whitemoor Lakes

 Lichfield, Staffs.

 28-30 September 2018



Board of Trustees

The AGSD-UK is managed by a volunteer Board of Trustees elected by its members at the Annual General Meeting held each year as part of the Annual Conference. The current members of the board are listed below. Trustees are unpaid volunteers and are debarred by charity law from any financial gain from their involvement with the charity. If you would like to volunteer to help the charity in any capacity or would like to consider becoming a Trustee, please get in touch with the Chairman via the Contact us page.

For background information about our Trustees and officers please see our profiles page.

Michael Porter - Chairman

Stuart Alderson - Trustee

Jayesh Pindolia - Trustee

Jane Guy OBE - Trustee

Nick Jones - Trustee

Heneage Legge-Bourke - Treasurer

Ailsa Arthur - Trustee



The following paid staff are based at the AGSD-UK office (hours Monday to Thursday 9am-5pm). Address & telephone.

Allan Muir - Charity Director


Home-based paid staff

Jane Lewthwaite - Specialist Care Advisor (Pompe)
Jane is employed through industry grants to support Pompe patients and families.

GSD Type Co-ordinators

Please see the list of volunteer co-ordinators here.